Boy, 4, who must wear a helmet during playtime due to rare blood disorder



10:56 GMT, 26 April 2012

Like any young boy, Noah Edwards loves a bit of rough and tumble with his friends.

But the four-year-old must wear a crash helmet when he plays after he was diagnosed with a rare blood condition.

The platelet function disorder means even the slightest bump can cause severe
bruising. If Noah cuts himself he bleeds excessively and requires
urgent attention and treatment.

Noah's mother said doctors first blamed her for her sons bruises

Noah's mother said doctors first blamed her for causing her sons bruises

He requires constant supervision to make sure he doesn't fall or hurt himself.

His mother Ruby, 38, said was dismissed by doctors as overprotective after sharing her concerns and even faced accusations she was assaulting her son
in the months before he was eventually diagnosed.

Ms Edwards, who lives with Noah and her daughter Maya on a farm in Worcestershire, said: 'I have been accused of physically abusing my son and still have to endure the looks that indicate people believe my son is not being well looked after.'

When Noah was eventually diagnosed with the condition by specialists at Birmingham Children's Hospital, Ruby decided to launch her own charity, called Funny Blood, to raise awareness of the disease.



Noah wears a protective helmet when he's out playing with his sister

She said: 'I want to share the experiences and information I have had with other parents and children with the same or similar disorders, so they will not have to go through what my family has.

'The reason I named the charity Funny Blood is because this is how I describe the condition to my daughter and other children who take an interest in Noah and his bruises or his helmet.'

Ruby, a business consultant, said trying to lead a normal life can be a challenge, but both she and Noah had learned how to handle the condition and get on with things.

She said: 'Noah is never going to be a boxer or a rugby player but I try and make sure that he does everything a four-year-old boy is meant to do.'

Funny Blood raises money for the Birmingham Platelet Group, which provides information and new treatment plans to patients with platelet conditions.

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